tag:blogger.com,1999:blog-921971826505373965.post1213906715917297531..comments2023-09-26T04:50:53.501-04:00Comments on Live Laugh Lungs: Newborn ScreeningLive Laugh Lungshttp://www.blogger.com/profile/14794653870687841789noreply@blogger.comBlogger6125tag:blogger.com,1999:blog-921971826505373965.post-40819789167755002222012-09-16T10:55:46.700-04:002012-09-16T10:55:46.700-04:00Thank you a million times over!!!!Thank you a million times over!!!!Live Laugh Lungshttps://www.blogger.com/profile/14794653870687841789noreply@blogger.comtag:blogger.com,1999:blog-921971826505373965.post-30947194603508764012012-09-16T10:55:30.890-04:002012-09-16T10:55:30.890-04:00Ya, it happens. Crazy, huh?
Yay for doing the CF ...Ya, it happens. Crazy, huh?<br /><br />Yay for doing the CF walk!!!Live Laugh Lungshttps://www.blogger.com/profile/14794653870687841789noreply@blogger.comtag:blogger.com,1999:blog-921971826505373965.post-37373602320085240942012-09-16T10:54:20.599-04:002012-09-16T10:54:20.599-04:00Well said!Well said!Live Laugh Lungshttps://www.blogger.com/profile/14794653870687841789noreply@blogger.comtag:blogger.com,1999:blog-921971826505373965.post-10357606237858897472012-09-15T20:33:33.160-04:002012-09-15T20:33:33.160-04:00Hi Jess,
My name is Paulina and I work for Sandra ...Hi Jess,<br />My name is Paulina and I work for Sandra Rinomato, who has sent me to your blog. <br />Very inspiring! It's refreshing to see how positive you are and encourages me to remember to live/laugh. I wanted to let you know that I'm going to write to these health ministers to advocate for newborn screening. <br /><br />All the best,<br />Paulina Vuheartmusichttps://www.blogger.com/profile/04321859400527236182noreply@blogger.comtag:blogger.com,1999:blog-921971826505373965.post-45087312300283846842012-09-10T09:28:33.604-04:002012-09-10T09:28:33.604-04:00I was speaking with a former nurse from the CF Cli...I was speaking with a former nurse from the CF Clinic on Wednesday of last week. What a woman! she was awesome! she mentoined a young lady here in the valley was just finally diagnosed at the age of TWENTY!!! her sweat test came back negative so they didn't consider CF again- that blows my mind! Screening is so important. My husband and I were fortunate enough to have genetic testing done and they put a rush on it whlie I was pregnant due to two different strands of the CF gene in my family. I am not a carrier. But the amount of inforamtion we received was incredible. Screening NEEDS to be mandatory - I agree with Pamela- the cost is minimal if you can cut down on critical care and get diagnosis early. ON a different note- we are doing the CF walk in May and are starting our fundraising NOWAnonymoushttps://www.blogger.com/profile/11912381145397673979noreply@blogger.comtag:blogger.com,1999:blog-921971826505373965.post-16314495986467961572012-09-09T09:52:19.758-04:002012-09-09T09:52:19.758-04:00Here, Here!
It's time to turn our governments...Here, Here! <br />It's time to turn our governments around so we collectively view healthcare with a proactive approach! While there is certainly a cost to screening (for any illness), it doesn't come close to the cost of hospitalization for critical care, and what cost is our government assigning to the suffering and lost opportunities for the patients and their families?<br />Phone and write your MP!Pamelahttp://pj-sharedjourney.blogspot.canoreply@blogger.com